Attempting to correct sync with lemmy.world

@PatternChaser@mas.to avatar

PatternChaser

@PatternChaser@mas.to

Retired firmware architect; armchair philosopher; Gaian Daoist (tree-hugger). INTJ. Autist.

I don't follow-back, I follow interesting.

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johnnyprofane1 , to actuallyadhd group
@johnnyprofane1@neurodifferent.me avatar

Yeah. I write passionately about .

AND I am a proud Social Justice Instigator.

What I can't have TWO dreams?

Let's ask @GretaThunberg
about that one.

includes and

.
@actuallyautistic @actuallyadhd @actuallyaudhd

https://youtube.com/watch?v=gPcoUNwp-_w&si=fc0j4zXAI9GWvYK7

PatternChaser ,
@PatternChaser@mas.to avatar

@johnnyprofane1 @actuallyautistic @actuallyadhd @actuallyaudhd

Yes, many autists have a strong feeling for injustice of any and all sorts. I think it stands alongside honesty in our most basic and deep emotions?

NPR Bot , to Random
@NPR@press.coop avatar

Scientists restore brain cells impaired by a rare genetic disorder

A therapy that restores brain cells impaired by a rare genetic disorder may offer a strategy for treating conditions like autism, epilepsy, and schizophrenia.

https://www.npr.org/sections/health-shots/2024/04/30/1247900797/timothy-syndrome-genetic-disorder-brain-cells-restored?utm_medium=JSONFeed&utm_campaign=news&utm_source=press.coop

PatternChaser ,
@PatternChaser@mas.to avatar

@pa @Dremmwel @NPR @actuallyautistic

Yes, I think many of us agree that our condition is not a disease to be cured, but only a difference. And besides, there is no 'cure'. The only way to stop autists from being born is eugenics, and I hope everyone knows how wrong and undesirable eugenics is...

The fact is that all 'therapies' offered to autists or their guardians are not intended to benefit us. They are intended to make us more convenient, and less disturbing, for NTs. 😐

PatternChaser ,
@PatternChaser@mas.to avatar

@Dremmwel @Mux @pa @actuallyautistic

I respect your view, but you seem to be reading-in things that people haven't said.

For myself, I would never try to coerce anyone into 'treatment' they don't want, nor deprive anyone of treatment they do want. Nor would I "cancel" research...

At the least, it should be made clear that all 'therapies' offered to autists are not for our benefit, but for the convenience of NTs. They're to make us seem more like them. <shudder>

PatternChaser ,
@PatternChaser@mas.to avatar

@Dremmwel @pa @NPR @actuallyautistic

Yes, 𝕜𝕟𝕠𝕨𝕚𝕟𝕘 𝕔𝕠𝕟𝕤𝕖𝕟𝕥 is paramount, for everyone.

No-one is suggesting that research be "denied". 👍

PatternChaser ,
@PatternChaser@mas.to avatar

@Mux @Dremmwel @pa @NPR @actuallyautistic

The "need to stim" is something you would want to suppress? Given that it's a stress-relief practice, it seems desirable...?

PatternChaser ,
@PatternChaser@mas.to avatar

@Dremmwel @Mux @pa @actuallyautistic

No toot that I have read here seems to speak, or try to speak, "in the name of all autists"! 👍

PatternChaser ,
@PatternChaser@mas.to avatar

@GreenRoc @Dremmwel @pa @NPR @actuallyautistic

The background to this is that people have a choice: be yourself, and get rejected, or pretend to be NT, and get rejected, but not as quickly or as often. The NT population WILL NOT accept us for what we are!

russellmcormond , to ActuallyAutistic group
@russellmcormond@spore.social avatar

With @actuallyautistic discussing "AI", I thought this Embrace Autism article discussing "Valuing truth over conformity" which was sparked by a talk on "AI" is interesting.

https://embrace-autism.com/valuing-truth-over-conformity/

Personal note: I've been confused my entire life about why other people around me don't seek "truth", and also why so many people around me get upset at me when I speak.

My has helped me better understand the previous 5 decades of life.

PatternChaser ,
@PatternChaser@mas.to avatar

@russellmcormond @actuallyautistic

Can't open the link; blocked. 😐

catswhocode , to ActuallyAutistic group
@catswhocode@mastodon.art avatar

@actuallyautistic @actuallyadhd Been rewatching The Magicians Season 1, and I suddenly feel like the magic users are the neurodifferent people and everyone else is neurotypical! :blobfoxlaugh: maybe I'm onto something

PatternChaser ,
@PatternChaser@mas.to avatar

@catswhocode @actuallyautistic @actuallyadhd

"The Magicians" — what's that, then? And where can I watch it (after I've watched all available episodes, of course!)? 😉

PatternChaser ,
@PatternChaser@mas.to avatar

@catswhocode @actuallyautistic @actuallyadhd

Thanks, I'll check it out...

PatternChaser ,
@PatternChaser@mas.to avatar

@catswhocode @actuallyautistic @actuallyadhd

I looked on Netflix, and on Amazon Prime video too, as well as searching my Sky box, but nothing. [Except one of them offered it as a purchase, as if I don't already pay the b*ggers! 😐]

I'll catch up with it eventually. 👍

VeryLateDiag , to ActuallyAutistic group
@VeryLateDiag@neurodifferent.me avatar

Hi. I haven't been on social media for the past year or so. (Mental health: very not good.)

But yesterday I had the final part of my autism assessment, and the official verdict is that I am .

It's a relief, but it feels a bit weird. I guess 50+ years of bafflement and self-loathing don't just go away overnight. But I made a bargain with the universe that I'd try to give living as my real self a go if the diagnosis was autism.

Just need to find out who/what my 'real self' is.


@actuallyautistic

PatternChaser ,
@PatternChaser@mas.to avatar

@VeryLateDiag @actuallyautistic

Yes, you will feel it necessary to review your entire life in the light of this new information. That will take a while. 😉

I was diagnosed 6 years ago, aged 63. If you want to chat, feel free to reply?

Welcome to our dance! 😀 👍

PatternChaser ,
@PatternChaser@mas.to avatar

@VeryLateDiag @KoosPol @actuallyautistic

If you want to find us again, the following hashtags might help:


Nice to meet you! 😀

catswhocode , to ActuallyAutistic group
@catswhocode@mastodon.art avatar

@actuallyautistic is it weird that I keep wondering if I'm autistic? I think it's because I haven't had a formal diagnosis, but I have many of the traits and I also think that my mother, sister, and possibly father are autistic :bunhdthinking:

PatternChaser ,
@PatternChaser@mas.to avatar

@callunavulgaris @catswhocode @actuallyautistic If you look like Raph, you are pretty lucky, IMO. 😀

PatternChaser ,
@PatternChaser@mas.to avatar

@callunavulgaris @catswhocode @actuallyautistic

No, not big-headed at all. Autists speak with honesty. Don't apologise for that. I consider it our greatest skill and benefit! [Honesty, that is, and our deeper-than-deep commitment to it.] 😀

PatternChaser ,
@PatternChaser@mas.to avatar

@catswhocode @callunavulgaris @actuallyautistic

Astrid is a TV series, made in French, but available with English subtitles.

Astrid is the first autistic character I've ever seen that convinces me she's #ActuallyAutistic. Raphael is the police-person she helps. I'm nearly through series 1, and it's a long time since I enjoyed watching anything as much as I do Astrid! You should try to track it down... 👍

PatternChaser ,
@PatternChaser@mas.to avatar

@catswhocode @callunavulgaris @actuallyautistic

You can't be too honest! 👍 😃

[N.B. NTs may disagree, but ... who cares? 😉 ]

woozle , to Random
@woozle@toot.cat avatar

I'd apply for this except for
[quote]

Work requires a Bachelor's degree in mathematics, computer science or equivalent coursework or technical training.

[/quote]

I don't do coursework or training. We've never really gotten along.

PatternChaser ,
@PatternChaser@mas.to avatar

@woozle If you have the skills, go ahead and apply! 👍

Uair , to ActuallyAutistic group
@Uair@autistics.life avatar

@actuallyautistic @resistance_news

Y'know, there's an easy way we can fight back against the enshittification of everything, both online and off. I never realized it, but i've been fighting back all my life.

Never click an ad and consciously avoid spending any money on a company that successfully managed to fling its advertizing feces in your face.

If ads didn't work, the entire capitalist structure of the internet would collapse. Do your part. Make them not work on you.

PatternChaser ,
@PatternChaser@mas.to avatar

@Uair @actuallyautistic @resistance_news

Yes, our entire world is directed toward promoting #consumption and #profit, with the aim of obtaining, maximising, and retaining #PersonalWealth (mostly for #Billionaires and the #SuperRich). It's that that is causing all of our problems, I think?

👍🙂

Mux , to ActuallyAutistic group
@Mux@swingset.social avatar

@actuallyautistic
I often hear about temperature dysregulation, but I don't think I experience that myself. Rather, I experience sensory sensitivity to heat.

I was wondering how this manifests in the community. Are you sensitive to cold? To heat? To dryness? Humidity? Or are you generally dysregulated? And what does that mean for you?

PatternChaser ,
@PatternChaser@mas.to avatar

@Mux @actuallyautistic I'm usually cold when I go to bed, but when I wake in the morning, my hands and feet are on fire, and I get up and walk around for a few minutes with no shoes or socks, to let them cool down. Then I get properly dressed.

Uair , to ActuallyAutistic group
@Uair@autistics.life avatar

@actuallyautistic

Question about isolation:

When i go too long without human contact, all my mind does is have imaginary conversations with people. I can't use it for anything else. Video ganes are sometimes enough of a distraction, otherwise i'm composing, i'm looping the same thoughts i never got to share with someone, 24/7. Watching a movie, reading a book, doesn't matter. My eyes are open but what's going on in my brain doesn't change.

Any suggestions for how to manage that?

PatternChaser ,
@PatternChaser@mas.to avatar

@Kellyshenanigans @Uair @actuallyautistic

I sometimes do that too. But it only helps a bit... 😐

nettle , to ActuallyAutistic group

@actuallyautistic

Do you have an easier time taking care of the needs of others than yourself?

If so, do you have (or know of) any theories for why you work that way?

PatternChaser ,
@PatternChaser@mas.to avatar

@jens @nettle @actuallyautistic

Me too! I had a recent crisis, and the most difficult part of it was that I had considered the wellbeing of everyone involved except me. It took me a while, but I finally realised that I deserve consideration too. That was when I could start to recover...

BenjaminFaliere , to Random
@BenjaminFaliere@hostux.social avatar

Does anybody have some content related to symptoms evolution after #adhd or #autism reveal?
Not for a friend ;)

PatternChaser ,
@PatternChaser@mas.to avatar

@axnxcamr @BenjaminFaliere @actuallyautistic @dramypsyd

Following diagnosis, you have a new vocabulary that you didn't have before, to explain feelings (etc) that you didn't recognise, or didn't know you had, before.

As a result, your outward behaviour can become more obviously autistic; perhaps it might seem "heightened".

I don't know of articles, though. Maybe someone else does?

#AuDHD

PatternChaser ,
@PatternChaser@mas.to avatar

@pathfinder @dramypsyd @axnxcamr @BenjaminFaliere @actuallyautistic

Yes! I was a very late diagnosis, aged 63, and I now know I've been masking, poorly and unconsciously, for my whole life. But I had no idea. I thought I was NT, but very bad at it...

Now, I appear more #autistic, because I have the #vocabulary to express what I feel, and I didn't before. And I don't mask as much or as often....

sebwhatever , to ActuallyAutistic group
@sebwhatever@mastodon.social avatar

@actuallyautistic

I am...?

PatternChaser ,
@PatternChaser@mas.to avatar

@sebwhatever @actuallyautistic

Religious. I call myself a 'Gaian Daoist', where the 'Gaia' bit is Lovelock's Gaia extended to cover the Universe.

I was raised by Christian Cultists (Roman Catholics), but rejected that as soon as I was old enough.

catswhocode , to ActuallyAutistic group
@catswhocode@mastodon.art avatar

@actuallyautistic Hi folks! I'm new here, but I have been wondering if I'm autistic, and have been looking for related communities. I have taken some of the official online tests and have scored pretty high, but I also have a brain injury, which makes diagnosis complicated.

PatternChaser ,
@PatternChaser@mas.to avatar

@yourautisticlife @catswhocode @actuallyautistic

I think that's how my #autism became more outwardly obvious — physical brain damage caused by #MS made it much harder for me to mask, when my mental horsepower was reduced.

This is only my theory, mind you, not medical 'fact'. But I find it more convincing than any other explanation I've come across...

#AuDHD

Uair , to ActuallyAutistic group
@Uair@autistics.life avatar

@actuallyautistic

Well, i lost another "friend". I mean...he's a snitch for the cops and thinks putin has the right idea, but my breaking point was when he got black market antibiotics for a virus and took half of them.

Now he's sulking because i called him out on it. I called him ignorant, and said facts are different from opinions.

I know it's acceptable to wield intentional ignorance to deniably kill weaker people, but this dude /is/ weaker people.

1/

PatternChaser ,
@PatternChaser@mas.to avatar

@Uair @actuallyautistic

"It's acceptable to ... kill weaker people"? 😱

Is this sarcasm that I missed, or are you quoting someone else's attitude, and I misunderstood?

sebwhatever , to ActuallyAutistic group
@sebwhatever@mastodon.social avatar

@actuallyautistic

I masturbate...?

PatternChaser ,
@PatternChaser@mas.to avatar

@felyashono @sebwhatever @actuallyautistic

In fairness, this is a public, and adult forum. That means all kinds of non-work-related stuff will appear.

If it's a problem for you, don't check your social media while you're at work?

PatternChaser ,
@PatternChaser@mas.to avatar

@ratcatcher @sebwhatever @felyashono @actuallyautistic

If you check your social media at work ... you will see social stuff that probably isn't work-related. But that's what we'd all expect, yes?

Perhaps you shouldn't be checking your Mastodon while at work? [I closed my FB account, years ago, because it wasn't 'compatible' with my work.]

PatternChaser ,
@PatternChaser@mas.to avatar

@Sharr0w @sebwhatever @ratcatcher @felyashono @actuallyautistic

Is it fair to say that public social media come with an intrinsic (i.e. not explicitly stated) content warning? 🤔

PatternChaser , to Random
@PatternChaser@mas.to avatar

I have little experience of meltdown or shutdown, but I experienced an extreme instance of one or the other a few days ago. I can't seem to get past what happened, even 10 days later. Is there any help for such things?




PatternChaser OP ,
@PatternChaser@mas.to avatar

@rabia_elizabeth @actuallyautistic

Thanks! And thanks too for taking the trouble to reply! 👍

theautisticcoach , to ActuallyAutistic group
@theautisticcoach@neurodifferent.me avatar

Do my comrades use functioning labels?

If you don’t - why? What about them irks you?

If you do - why? Why are they important to you?

@actuallyautistic

PatternChaser ,
@PatternChaser@mas.to avatar

@melindrea @theautisticcoach @actuallyautistic

High- and low-functioning are medical terms. They refer to those who don't have special educational needs, and those who do. Just that. Only that.

They are convenience-vocabulary for medical professionals, badly misunderstood and abused in everyday chitchat.

They are best avoided.

PatternChaser ,
@PatternChaser@mas.to avatar

@robrecht @melindrea @actuallyautistic

Oh. I was repeating what the nurse who diagnosed my autism told me. I thought he would know, and didn't check <blush>

PatternChaser ,
@PatternChaser@mas.to avatar

@robrecht @melindrea @actuallyautistic

I'm in the UK, where we have nurse-specialists, with specialist training. The man who diagnosed me is fully and adequately qualified. I got to know him during and after my diagnosis, and I can confirm that he has a real and in-depth understanding of autism and autists, as so few NTs do.

PatternChaser ,
@PatternChaser@mas.to avatar

@robrecht @melindrea @actuallyautistic

"Use of the term “low-functioning” in the autism spectrum disorder (ASD) literature dates to at least 1969 (Goldfarb, Goldfarb, & Pollack, 1969), and the term “high autistic” was used as early as 1973 (DeMyer et al., 1973). These modifiers were often used to characterize children with ASD on the basis of characteristics not specific to ASD (e.g., IQ, language)."

This seems to back up my original post. Taken from here: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5711622/

PatternChaser ,
@PatternChaser@mas.to avatar

@robrecht @melindrea @actuallyautistic

I always try to express myself clearly. "Seems to" was correct, while "is" or "does" would've been over-stating my position. 👍

PatternChaser ,
@PatternChaser@mas.to avatar

@robrecht @melindrea @actuallyautistic

Have you heard of "E-prime"?

robrecht , to ActuallyAutistic group
@robrecht@kind.social avatar

@actuallyautistic I'm probably inviting trouble by talking about this, but I kinda feel like I owe it to myself at least to say this:

I used to be unconditionally supportive of people self-diagnosing.

These days I'm kinda... Less so.

And the reason for that is the pandemic.

Before I continue, I want to emphasise that I will -never- tell anyone that what they've concluded about themselves is wrong.

And I don't want to dismiss how anyone feels.

(1/?)

PatternChaser ,
@PatternChaser@mas.to avatar

@adelinej @robrecht @actuallyautistic

Yes, I've read so many times about people angling for an autism diagnosis to get the benefits. What benefits? I know of no country where autists can gain 'benefits'. In some countries, people with mental health issues, perhaps quite specific ones, can get some help. But I don't think it's the sort of help that might cause others to want that same help?

lexx3000 , to ActuallyAutistic group German
@lexx3000@masto.ai avatar

@actuallyautistic i keep seeing here ocd or "extremely organised" as a definitely autistic trait, while messy being assigned to adhd and i'm (adult diagnosed) living with a diagnosed in a childhood person and we're messy as hell, especially in combination while neither of us suspect adhd and it's just very annoying to have it as a given here, does anyone share this even?

PatternChaser ,
@PatternChaser@mas.to avatar

@lexx3000 @actuallyautistic I could reasonably be described as "extremely organised", but it's only because if I weren't, I would forget to do the things I want to get done, or lose a thing because I can't remember where I put it... 😀

alice , to ActuallyAutistic group
@alice@lgbtqia.space avatar

Is autism self-diagnosis valid? Yep. 💜

Hey all, after reading dozens of research papers, and meta-analyses, and living through it, I made a thing!

I'd love it if you'd check it out! 🥰

https://codeberg.org/alicewatson/asd-self-dx/src/branch/main

Update: I've added a lot of new stuff to the project.

@actuallyautistic

PatternChaser ,
@PatternChaser@mas.to avatar

@pathfinder @Dr_Obvious @AeonCypher @alice @actuallyautistic

Here's a link to an article I found interesting: "Me and Monotropism: A unified theory of autism — By Fergus Murray (science teacher, writer and 'autist'), on single attention and associated cognition in autism"

https://www.bps.org.uk/psychologist/me-and-monotropism-unified-theory-autism

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